Friday, November 20, 2015


What is Rett Syndrome?

Rett Syndrome is an uncommon, but severe brain ailment that affects female children typically. It's usually discovered in the first two years of female life, Rett Syndrome is a neurodevelopmental disorder that affects girls almost predominantly. It is identified by normal early growth and development followed by a slowing of development, loss of purposeful use of the hands, distinctive hand movements, slowed brain and head growth, problems with walking, seizures, and intellectual disability.

Rett Syndrome also causes problems with muscles and coordination. Walking becomes awkward as girls develop a jerky, stiff-legged gait. A girl with Rett Syndrome may also have uncoordinated breathing and seizures.

Planning a Fundraiser assists in the research for the cure of Rett Syndrome

Planning a fundraiser puts us back in the driver’s seat. Any amount raised, regardless of how big or small, takes us one step closer to the cure. Often Rett Syndrome can make us feel helpless, since there is so little we can do to alter its course.

Accepting the diagnosis of Rett Syndrome is not easy. It can be a tragic, dark and isolating period until decisions are made regarding how to proceed. Each family differs and will cope in their own unique different way. However, for many, hosting or participating in a fundraising event can bring comfort and healing as well as a sense of community.

Hosting an event or just supporting the event is a commitment. The interactions you create with other families and volunteers within the Rett Syndrome community will be your support, even as you are supporting them. Example of families who are benefiting from this fund raising research is the Hughes family daughter, Emily Hughes. This is Mark and Melanie Seigler’s granddaughter, the owners of Seigler Funeral Home in Mulberry, Florida. Emily was recently diagnosed with RTT. The resulting regression triggers lifelong impairments, including speech-loss, seizures, scoliosis, irregular breathing patterns and more than half of the women and children affected will lose the ability to walk. When Emily was diagnosed the family became very passionate about finding a cure not just for Emily, but all children with this disease.


The annual Strollathon is a signature fundraising event with event listings posted on This family event is led by local volunteers, and raises crucial research dollars and public awareness of Rett Syndrome (RTT). Since 2004, volunteers and families have assisted to raise worldwide over $6.8 million, and have grown the Strollathon program, which has grown from 4 events to over 20 events annually. This day brings together the children and women living with Rett Syndrome along with their families, and the community. This event builds an understanding and a sense of community among local Rett Syndrome families and society at large.

The Strollathon 2015 event was held in Lakeland, Florida. This year event in just one day raised a total of $32,121.30. Mark and Melanie Seigler, and the Hughes family raised $8,595.00 of the $32,121.30. This family is truly grateful for everyone who assisted in the event and financially donated towards finding a cure.

Seigler Funeral Home (Mark & Melanie Seigler) in Mulberry involvement

SEIGLER FUNERAL HOME is an organization which has been in existence since 1917, and it was fully established in 1926, and is one of the only two funeral homes in Polk County that is still owned and operated by the founding family. For the last three generations Seigler Funeral Home has taken great pride in providing "Exceptional Personal Service" that the families we have had the privilege of serving expect and deserve. We will always strive to do our utmost to provide each family we serve with integrity and dignity, regardless of social or economic standing.

Mark and Melanie Seigler believes passionately in serving their community, so when they reached out to their community for help with their granddaughter, Emily their community responded. The Seigler family has served so many families over the years who have undergone the emotional strain of losing a loved one, and now the community is there for them when they needed assistance.

The Seigler family will continue to be there for the community to help during a time of need or just to discuss pre-arrangements to lift the burden of decision-making pressure at a time of grief and emotional stress. For more info please visit

Seigler Funeral Home
1300 E. Canal St, Mulberry, Florida 33860
Phone number: (863) 425-1131 or (863) 425-1858

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